Wednesday, July 20, 2016

How to Get Through Chemo (advice borrowed from my wife)

Last week was a busy one for our little family of medical tourists in Houston. The kids continued their epic party with cousins, doing things like opening a massive doll spa and creating new animal-airplane lego hybrids. Meanwhile, Nicole and my mom took turns hanging out with me during long sessions of having my blood cycled through a machine to collect bone marrow stem cells, followed by a flurry of tests and procedures to get me ready for my first round of high-dose chemo.

Over the weekend, I had no medical appointments whatsoever for the first time in a month or so. As it happened, my energy levels were picking up at the same time and I felt sort of normal for a few days. It was unexpected and sweet. On Monday, I got to eat some of Surinder Riar's Punjabi-style eggplant (glorious!) and spent the evening playing a puzzle game with the six kids in the house plus my mom and Nicole. Seeing it engage their minds while sharing space on and around the couch with them was just perfect. Exactly the sort of thing I wanted from my last day of freedom for a while.

Last night (after ducking out for one last dinner out with Nicole), I checked into the hospital. For the next five days, I'll get a different regimen of chemo than I've had before. This one is supposed to be the toughest of the entire treatment process: it will knock my immune system out entirely and I'll have to wait for the bone marrow stem cell transplant this weekend to gradually rebuild it. I'll also likely have a more extreme experience of typical symptoms like fatigue and digestive problems, along with mouth sores alarming enough that even with pain medication, some patients aren't able to make themselves eat. It can take several weeks for patients to recover to the point where it's safe to release them, so the doctors and nurses told me to plan on 3-5 total weeks.

The first day's dose of chemo is dripping into me as I write. Over the next few days, I'll probably start to feel the promised symptoms. But since this treatment with all its troubles gives me a high probability of cure, as opposed to death, I will take it with thanks on my lips (whenever I am not swearing my way through pain, diarrhea, or vomiting).

In any case, as someone who had made it through six cycles of fairly rough chemo in order to graduate to two cycles of extremely rough chemo, I have decided to write up a brief guide to getting through (with most of the insights stolen from my wife).


Sometimes, I think of myself as a very strong and brave person. I am not sure why. Maybe it's the general human tendency toward overconfidence. Or maybe it's that my good looks and natural charm trick me into thinking I possess all kinds of other virtues. Trust me, though, when I tell you that I am wrong. Put a few pounds of retained water weight on me and the tough person in the mirror is reduced to a groaning pile of blah. And if a nurse says she will need to clean out some blood clots under the plastic cover to my central line, any bravery I imagine myself to have will be washed over by fast-rising anxiety: not because the process is particularly painful, but because it involves tugging slightly on stitches which are attached to my body, and knowing this still weirds me out.

So the bad news is that unless the human average is shockingly low, I am not that strong or brave. But the good news is that chemo patients don't have to be. According to my wife, they need basically two things:

1) A High Tolerance for Absurdity

Chemo is sort of absurd to begin with. Taking known toxins to improve your health? It may work, but it doesn't make any simple, intuitive sense. The symptoms can also be weird and embarrassing.
In my experience, they are manageable if instead of just struggling, you can find times to admit they are weird and maybe even laugh at them.
Case in point: On one particularly nauseated day, Nicole and I happened to drive past an amusement park. Looking across a place I had no desire to go, I told Nicole I planned to start a charity called "Roller Coaster Rides for Chemo Patients" designed to cheer them up. For the next twenty minutes, she and I laughed deliriously as we imagined roller coaster cars full of bald, puking people trying to let a misguided someone give them a good time.
I may not have been stronger than my symptoms that day, but I was sillier. And that, it turns out, was enough.

2) Discipline

There's no problem with experiencing feelings like fear, discouragement, panic, and/or defensive paranoid hostility toward anyone the people you. As one doctor recently told me, anxiety is a sign that her patients are really listening to what they're being told. But you have to find a way to separate your emotional state from your behavior enough to follow directions anyway.
As a chemo patient, you'll often do better if you can eat when you don't want to eat. You may be encouraged to walk when you don't want to walk. And there may be lots of other regimens to keep up with. At home, it was a sometimes-dizzying assortment of medications. In the hospital now, I have four different mouthwashes with different protocols. For about five hours per day, I will be rinsing out my mouth or else keeping an eye on the timer until I can next eat or drink--or until it's time to start four minutes of rinsing with the next mouthwash. (Come to think of it, that one requires some tolerance for absurdity as well as discipline.)
The word discipline comes from "disciple," which meant a student, often of a religious teacher. Disciples needed both the humility to listen to their gurus' instructions, the consistency to follow them, and the creativity to figure out how apply them in their lives.
During chemotherapy, there is an awful lot you cannot control. But you can control how much discipline you exercise in following through on your doctors' instructions--and that humility, consistency, and creativity can make a big difference.

Those two things, as Nicole observed, are enough. You don't need to be exceptionally strong or brave (or for that matter, good-looking or charming). You just need to be tolerant of the strange experiences you have and a little stubborn when it comes to following medical directions, and you'll get through.

Though Nicole's observation came fairly early in my treatment, my experience has continued to confirm its validity. At this stage, all I might add is an optional third recommendation: an openness to small joys and unexpected blessings. A chaplain I talked to a few weeks ago explained it well. He showed me his hands tightened into fists. This is what we want to do in the face of suffering, he said. We want to recoil, cling to our lost sense of control, and close ourselves off from everything. Then he opened his hands, palms facing upward. It's only if we open ourselves to the things we are asked to pass through, he said, that we are also open to receive the moments of grace and blessing along the way.

We will see how I feel about this all in a few weeks, but I'm feeling confident today. I have a pretty good ability to laugh at odd and troublesome things. I have discipline to hold onto while things still seem easy and to carry me through the times when things get rough. And for the most part, I am willing to keep my palms open to trouble and joy alike.

In other words, at age 33 I am finally feeling relatively prepared to face life on this earth.

May I emerge from the coming months, as statistics suggest I will, to linger in this life for many years to come.

Friday, June 24, 2016

Hospital Scripture Study (part two)

A week or so ago, I wrote about focusing on a single passage while thinking about--though not reading--the scriptures. Zooming in on a (mostly) memorized passage is only one of many options, though. During the same hard hospitalization, I also spent time thinking about the whole Book of Mormon.

It worked like this. After years of reading, I know what the books of the Book of Mormon are and what order they come in. I also know roughly what's in each one. But in my regular reading, I'm too stuck in chapter and verse to think much about how they all fit together.

It was different in the hospital. It was a pain to pull up chapter and verse, but even lying down with eyes closed, I could just think through the books and kind of feel for a rhythm or shape to the whole book. I'd try to feel the rise or fall of each group of books and then play the shape in my head like music.

Trying to put it into words afterward, here's roughly what I noticed:


Origin Story: 1 Nephi, 2 Nephi, and Jacob cover the origin of the Lehites. There's a strong forward rhythm through 1 Nephi as they follow crazy faith to get to their promised land, then this shift to a slow, long notes feel as they try to lay out the core of their spiritual foundation for the new life in 2 Nephi and Jacob.

The Grind: Enos, Jarom, and Omni shift to a new rhythm. They take life for granted in the land, and the routines of everyday life--from hunting for food to fighting wars for survival--are just part of that life. Little strains of spiritual life streak out from time to time, but it's mostly about the grind: this is what we do, this is who we are. The musical phrases get shorter as you go as if to say "this is shorthand. This is shorthand for the song that never ends."

Complications and Reversals: Mosiah and Alma. It's almost like the song wants to talk back at itself. It's been saying "this is the same old, this is the same old..." and then all at once it splits into these different streams of new melody and starts intertwining them. It's saying that it's not just all the same old grind after all.
New songs. We've got people following a dream, a mirage, of claiming the old land of Nephi. But everything turns around. Zeniff is supposed to hate the Lamanites, but he sees good in them. Then he tries to trust them and things fall apart. Noah is a great king for building and prosperity, but spiritually empty. Abinadi compares him to a cloth dropped in flame, but it's Abinadi they burn. Then a bad priest named Alma turns good, but can't dodge the curses Abinadi prophesied. Except that for almost everyone, sooner or later, curses turn to deliverance. And did I mention half of this is told backwards in to a report to a man from a people our heroes thought had all died in a field of bones?
Never mind that. Get back to the story. By most of the way through Mosiah, all is set right. People have wandered in the woods, so to speak, but after the troubles four groups finally come together and there's a good king and a good priest and...the next generation is trying all kinds of crazy stuff out and their sons are at the head of it.
So then boom an angel and another big reversals, and now it's Alma #2 on God's side and trying to unwind the consequences of his past. Two-life father, two-life son and the histories of their people chugging on below them with equally dramatic reversals. Remember the constant war with the Lamanites that was the constant rhythm through the Grind? During Alma, so many people leave Nephites to join Lamanites or leave Lamanites to join Nephites it's almost impossible to tell who's who anymore.
And the mixed up rhythms of a new melody of war, where it's hard to tell where the real enemy lives--this snake of an enemy that works it way through Nephite and Lamanite nations, that wreaks havoc whenever there seems to be a chance for peace. The mixed up rhythms of the new war rise, and strains of the old origin melody of faith and courage shine through, and things resolve sort of neatly in the end with a new set of sons and new lands to disappear off to and the old generation passing reverently away. And it almost feels like it should stay that way, like the piece should pause at this moment of calm where the torch is passed and the hard won tranquility should stick. It almost feels like the song should end here.

Rising Toward Climax: But of course, it doesn't. Helman. Third Nephi. Fourth Nephi. How can it? When things are going well, for one thing, you naturally want to build on them. And sometimes you do that by building big, heavy castles in the air.
It's not just the same old song of human pride, though, because this time there's this urgent underbeat: the prophetic "the time is coming" from the rest of the book  is now "the time is almost here." And it gives this urgency and direction to the prophets' story. And in time with it, the stories of pride get faster, wilder, more desperate. Kishkumen running with a dagger bathed in blood. The secret oaths of Gadianton. Then more plots, more blood, more machinations and divisions and resolutions followed fast by collapses until WHOOSH the whole world seems to go up in flames and then descend into three days of darkness and a moan rises through the land.
And then in the midst of the moaning, there's a calming whisper. And in the midst of the darkness, darkness so thick you can feel it, there's a light. And then there, before you, is the promised Redeemer and there, on his hands, are the prophesied marks and he blesses the children who grew up in chaos and the peace of it flows through their families for generations.
And we've done it now. We've finally learned what it's like to live right and live well and live in peace.

Warnings: Except. Mormon, Ether, Moroni. Except.
Something melts in the melody of righteousness. Something small gives way, and then it all gives way, and then we're sliding fast again into an oblivion which we seem to want, which we seem willing to make all kinds of horrific sacrifices for. Not much of the faith-filled beat of the origin stories, not really any of the reversals of Mosiah and Alma. It's like the grind again, but this time under the grind is just something ugly. This rising and swelling will to meaningless power and through it to death. And over it, the only song is Mormon's lament for his people, his beautiful people, who gave themselves over piece by piece to the will of destruction.
And the tales that were hinted at early in the book: of the valley of bones, of the records found telling the tale of the people of bones--all that ancient history rises here to the foreground. For this people, and for the next people who will inherit it, the truth: that the will to meaningless power, the will to destruction, can consume an entire people. Yes, they all die at this part of the book. Everyone. Or rather: they were all dead to begin with wherever we started to look for something new. They had been great, like we strove to be, and they all killed each other as thoroughly as a nuclear holocaust.
And I'm alone now, says Moroni, through the layered memories of two dead peoples. A man sitting on the bones left by a people who sat on strangers' bones. And I will speak out from the grave to warn you and to give you what little teaching and ritual and spiritual gift I knew from a time when this fate was still something to be avoided.
And the day will come, Moroni says in the last plaintive note, when I will meet you before God oh people-who-lived-over-bones-and-bones. And then you will all know that what I tell you is true.


That is a long-ish written version of what the scripture-study-without-scriptures in my head felt like. I didn't do all the details every time, just started simply thinking about what the books feel like, and then ran through it again and again until it fell it the sort of loose groups or patterns I described above, and tried to just listen to them.

And the point was: to think. To remember. To engage in whatever way, whatever way I could come up with eyes closed stuck in the bed and in my head, with the book.

Because it's in that life of connection, not just in disciplined routine (though discipline is a great thing) that we come to know the scriptures.

Wednesday, June 15, 2016

Hospital Scripture Study (part one)

I've had a reputation in the wards I've live in as someone who knows the scriptures well. And while it is a tragedy, in some ways, that I will be remembered for this instead of for being really really ridiculously good-looking, I kind of like being the guy people text when they have a scripture question.

Because of my relative expertise, I am often asked during lessons on scripture study to divulge my study secrets. Unfortunately, unusual discipline about daily scripture reading is not one of them. I try to be pretty consistent for my kids, but my personal study habits have varied widely at different times in my life. Sometimes I do OK at reading a little each night (I've rarely even attempted to read in the mornings). Sometimes, I go an embarrassingly long time without reading scriptures on my own at all.

The most I can ever remember reading the scriptures is the month or so when I struggled with insomnia. I read the scriptures every night, focusing on books like Isaiah that have a reputation for being difficult. If I fell asleep reading, I counted it as a win. If I stayed awake for hours, increased scriptural literacy was an acceptable consolation prize.

I'm not convinced, though, that my familiarity with the scriptures comes from the occasional late nights we've spent together. What has mattered most, I believe, is the time I spend thinking and talking about the scriptures when I am not reading them.

For most of my life, I've spent time after I closed the book--or on days when I didn't even open the book--thinking about what a particular character went through or trying to imagine what they might have felt like in a given situation. I've spent a lot of time thinking through different teachings and wondering how they fit together. I even spend time thinking about the whole structure of a given book of scripture, trying to figure out how the parts contribute to the whole.

That's how I've gotten to know the scriptures so well. It's not just a matter of a physical habit. It's learning to let them linger.

I've spent a fair amount of time in hospitals lately, and it hasn't been conducive to sitting and reading hard texts. I've still thought about the scriptures a lot, though. One night, unable to sleep, I ran through what I remembered of the Lord's prayer dozens of times. Even though the simple language of the King James translation is hard to beat, I decided to come up with different wording for the ideas in my mind as a mental exercise in pondering their meaning. The next Sunday, having been discharged from the hospital, I wrote down my "translation" as well as I could remember it.

Here's the text from Matthew and from my hospital version. Matthew first:

The Lord's Prayer

Our Father
which art in heaven
hallowed be thy name
Thy kingdom come;
thy will be done
in earth, as it is in heaven.
Give us this day our daily bread,
and lead us not into temptation,
but deliver us from evil:
for thine is the kingdom,
and the power,
and the glory,
for ever.

And then here's my exercise:

Jesus' Prayer

Let the holiness of your name
reach down into the dust beneath our feet.
Let your kingdom rise among us,
your will fill us to the brim.
Give us the day's bread to eat, Father,
and cancel yesterday's debts
as fully as we forgive each others'
unfulfilled promises.
Guard us from our weakness, Father--
save us from our darkest selves.
Because the kingdom is yours,
power is yours,
glory is yours
in the moment and eternity,

Looking back at both, I'm reminded that I like the version from Matthew much better. But I'm glad I took the time to come up with my own, that I thought hard enough about the scriptures to rephrase them.

I've read the scriptures before. Memorized some passages even. Having once put that time in, I didn't need to open them to continue the lifelong project of writing them on my heart.

Different techniques will work for different people. As a writer, mentally rewriting worked for me. Something else would certainly work better for someone else. But the time we let the scriptures pass through our minds when the books are closed does matter, and I hope we can all find ways to keep their words and stories active within us.

Friday, June 10, 2016

Back to chemo

In life, there are things you can change and things you just have to find a way to make it through.

I think modern American culture tends to make meaning in life mostly out of the first: we measure ourselves by the difference we made, the things we chose and accomplished. We tend to see the other things, from minor inconveniences to major problems, as distractions on the way to building the lives we want. A successful life is one where we finish the things we wanted to get done.

It seems to me, though, that older cultures--preserved in part through our religious cultures--take another view. While religions call for plenty of personal and community change, they seem to treat being alive as its own important challenge and to place significant value on learning to endure life well. A good life means more than the luxury of accomplishment: a good life is learning to carry a difficult world with some kind of grace.

I'm a modern American. I like to choose my path and make a difference. My religion has also given me more of a vocabulary and tool set for thinking about what it means to endure well, but it's not a skill set I have traditionally wanted to spend too much of my time and attention developing.

That is changing.

Last Wednesday, I got discharged from MD Anderson Hospital in Houston after five days of intensive chemotherapy. It was the first cycle in a new set of treatments, planned for the rest of the summer and into the fall, which are supposed to make up for the failure of three months of chemo early this year to finish the job. By the time I was let out of the hospital, I felt the familiar, insistent sorts of gross I've come to except: twenty-five pounds of retained fluid weight and three days of delayed bowel movements pressing down on my guts, numbness and tingling from damaged nerves in my feet making my steps strange, head a little dizzy and body more than a little weak.

I was not thinking particularly philosophically at the time. Just paying attention to the strangeness of my body and trying to get out of the building. Even through the fog of physical unease, I felt a patient's sort of gladness--a mixture of muted excitement and profound relief--to be going home. Since my house is maybe two thousand miles away from the hospital, "home" in this case meant my cousin Manju's house,* a more than welcome place to spend my two weeks off before the next round of treatment. And I felt all kinds of grateful to have my little sister Judith in town to help me do all the little things a patient is supposed to do, if also little embarrassed that our quality time together had, thus far, mostly consisted of her watching me lie around and moan or else shuffle around and moan.

It was raining on our way back: first gently, then in quantities that triggered flash flood warning text alerts. We made it back home just fine, despite the Houston monsoon, and I made it through the night OK, peeing off maybe ten pounds by morning. By Thursday a little before noon, I remember sitting on a couch and feeling surprisingly decent. For the first time in days, I could actually breathe deep and just think.

I looked over at my sister. And then, without any warning, I started to cry. I felt totally overwhelmed and intimidated; just beaten down by the prospect of going through all the troubles and uncertainties of treatment again.

I'd been fairly patient through my prior months of chemo. I'd done a good job accepting it with a mixture of humility, humor, and really boring but important discipline. And yet, with a moment to think ahead, all that experience didn't feel like enough to carry me through again--especially given that the coming rounds are likely to be significantly physically harder.

It was after the panic that I got philosophical. Looking back, I think I've made it through cancer treatment before, both after the initial diagnosis in 2008 and the discovery of a metastized tumor in November of last year, by framing it mostly as a distraction.

As soon as I suspected I might have testicular cancer in 2008, I read about outcomes and focused my attention firmly on the 95+% survival rate. By the time the doctors gave me my diagnosis, I was already willing to think of this as something to go through on the way to other things. It was the same when doctors confirmed late last year that a colony had survived in my digestive system and decided, after seven years of keeping a low profile, to try to take over. I was fairly intimidated by the intensity of the coming treatment, but quite confident that after a few months of disruption I'd be back to my goal-driven life. "It's not going to be fun, but it is going to be fine" became our family motto. We were able to endure by looking for the light at the end of a not-too-long tunnel and pushing through. 

Then came scans in March and April that showed half of my tumor is left, wrapped around the main artery to the liver. It turns out to be an important artery, so surgery was out as anything but a last ditch option. It turns out more chemo, first in higher doses than I've had and then in higher doses than I could survive without a transplant of my own stored stem cells, is the best treatment option. The percentage chance that I will be fine is still quite high--probably in the upper 80s to low 90s--but given the length of treatment, it's getting hard to see cancer as a distraction I'm holding on through. It's starting to feel like this is my life for now.

 And maybe, as far as making meaning out of life is concerned, that is an acceptable thing. Maybe the work of learning to carry this difficulty is an important part of my time living in a body on earth.

I am trying to move forward with that mentality. Whatever I can endure, whatever I can learn, whatever humor I can find in absurdity and whatever beauty I can find, as it were, in ashes--those things can be my milestones.

It's been ten days since chemo.

One day I made it out of the house to walk and stood under a canopy of trees. This is my life, and it is good.

One day while lying on the couch, I watched my nine-year-old cousin Jasleen put together a puzzle of the presidents and told her stories of Ulysses S. Grant's bad driving and John Quincy Adams' secret to eavesdropping in the House of Representatives. This is my life, and it is good.

One day, I vomited and swore through the morning then felt good enough by 1 pm to go to church. I asked two men I barely knew to bless me, and they spoke not only with comfort from the Holy Ghost and eyes for eternity, but also about my two-thousand-miles distant children and the comfort I could be to them even in the midst of the stress my pain caused them. This is my life, and it is good.

One night, I woke up with a fever high enough to need to go into the hospital and did so despite my distaste for hospital stays. They found that my absolute neutrophil count (normal=1,500 to 8,000) was 6. I braced for a stay of many days. This is my life, and it is good.

One night, I struggled to ignore neuropathic pain in my feet, digestive pain, lower back aches from the hospital bed, fever, and body-wide exhaustion to finally get some overdue sleep. For hours, I failed. I started to wonder if the universe is really worth its suffering. I tried to pray, and failing to find words, settled for crying out in my mind, again and again, the single word "father" until I fell asleep in the midst of my many pains, the sharp sensation of ice against my neck dimming other stimuli just enough to let my mind go. This, too, is my life. And it, too, is good somehow.

 One night, having had more sleep and knowing my white blood cell count was improving, I took advantage of the hospital time to watch an NBA playoff game. The players danced across the court and in a few consecutive possessions seemed to execute each play flawlessly. I let my eyes follow them, then let my eyes rest. I felt proud to share a world with such mastery of a craft. Sometimes, findings ways to be grateful for this world is my life. And it is good.

*Manju is actually my mom's cousin, but is close to my age. Being from an older generation than me, she's happy to take on the role of overprotective auntie when needed. Because we remember playing as kids together, though, there's also a nice feeling of shared experience and comforting closeness. It's a great combination.

Wednesday, January 27, 2016

Mormon Lit Reading List: Become a MoLit Nerd for Just $17

A lot of people have one good experience with Mormon Literature and then come ask me where to find more. It's no easy task. Mormon Lit is so niche it tends to go under the radar when published and can be hard to find afterwards. Also: there's lots of Mormon Lit that's very bad. Some is just sloppily written. Some is annoying in its cheesiness, preachiness, or cynicism. Finding something you like can be tough.

And so, today, I'm going to offer a list of recommendations, limiting myself to one title per genre. These are works I have really enjoyed and that I think exemplify what Mormon Literature can achieve. Do yourself a favor: give one or more a shot. Make it through the whole list (requires $17 with shipping for used copies plus access to a Netflix account) and you're an official initiate into the world of Mormon Literature.

Novel: Bound on Earth by Angela Hallstrom (New from $7.70, Used from $0.01.)
Lots of fictional heroes are sort of loners, with small or absent families and a small circle of close friends. This is because it is hard to write large numbers of characters and relationships in a short space. Unfortunately, it means that many fictional depictions of Mormons--who tends to have large numbers of significant relationships--fall flat.
Bound on Earth does an impressive job of giving us real-feeling Mormon characters with lots of relationships. The book switches perspectives each chapter to get us into the heads of three generations of members of one family and see how they relate to each other and to the wards around them. Seeing what they go through over a period of decades is moving and often surprising and one of the Mormonest experiences I've had reading fiction. I highly recommend this book.

YA Novel: Slumming by Kristen D. Randle (New from $9.93, Used from $0.01)
The three protagonists in Slumming are the three Mormons their age in the school, and as someone who grew up in Ohio, the book gets points with me for its non-Utah setting. The characters' families feel real, not idealized or melodramatic, and their school world had the right mix of mundane problems and serious depth.
At its heart, this is a book about trying to be a disciple and help others and what can happen along the way. Are you actually condescending while trying to be helpful? Who needs help, and who is equipped to give it? What do you do when service brings you face to face with difficult moral dilemmas?
Some adults I've talked to struggled to get into the book because of the strong YA voice in the opening. I'd advise you to hold out anyway and follow the story through. Strong narrative, compelling themes, great depiction of Mormon characters dealing with typically Mormon problems.

Short Story: Folk of the Fringe by Orson Scott Card (New from $7.50, Used from $2.00, Kindle $7.99)
What's not to love about post-apocalyptic Mormonism?
The premise of Folk of the Fringe is that a nuclear war has taken place, destroying the old social order and leaving people to carve out new ways of living in an altered environment. We see Mormons in North Carolina and the West picking up the pieces and building a new society, and we get a good sense of the isolation and division that exists in it.
The collection gets points for striking, poetic images inside compelling stories and for using scripture as well as history evocatively in creating the future. I love what Card does with the submerged Salt Lake Temple and with Book of Mormon prophecy. I was hooked from the opening story and only thought "Pageant Wagon" could have used another draft.

Play: Little Happy Secrets by Melissa Leilani Larson (Free audio version at link)
I directed an early audio production and helped out with the original stage production, so I got to see this a lot and it remains one of my favorites. The protagonists, Claire is a recently returned missionary who moves back in with her close friend and pre-mission roommate and then realizes she has feelings for her.
The play gets points for running high on humanity and low on agenda. It's lovely just to watch Claire work through her experiences and make sense of things in her own way. Andthe best prayers I've ever seen onstage come in some of her monologues, as she walks around town and talks through her feelings with God.

Poetry: Let Me Drown With Moses by James Goldberg (Kindle book: $2.99. Can be read on PC with free app download.)
OK, so I'm cheating and recommending my own work, but none of my favorite Mormon poets--Merrijane Rice, Darlene Young, and Jonathon Penny--has a collection out. And most of the poetry collections I've read by Mormons are poetry first and only incidentally about Mormonism every few poems.
Let Me Drown With Moses makes my list because it's unabashedly Mormon, dealing with history and scripture, with questions of devotion and community and discipleship. It has some real staying power with people: one reviewers said that some of the poems "get stuck in your teeth" and leave you thinking for a while. I've had people tell me they shared poems in Church meetings, or that a certain line describes something they've been trying to explain for a while.
So yes, it's mine, and I'm hardly the greatest poet among living Mormons, but more than any other collection I know, this one tries to figure out what Mormon poetry might do for the community.

Graphic Narrative: The Garden of Enid by Scott Hales (Free tumblr account; scroll all the way down to begin)
There have been several Book of Mormon comics published in the past few years, and I'm currently partway through Dendo, a really promising missionary memoir. For graphic narrative, though, my recommendation goes to the year-long online comic The Garden of Enid: Adventures of a Weird Mormon Girl. It's at times quirky, snarky, and funny, at times thought-provoking, and then dramatic and moving in the next set. Also: no one in Mormon comics is as visually innovative as Scott, who plays with things like frame space in ways that make clear he's studied Scott McCloud and been reflective about his craft.
I watched Enid's story unfold over twelve months and I'd been interested to here what it's like for people who scroll back to the beginning and read from there.

Film: The Saratov Approach (Steams of Netflix, $13.98 new, $8.94 used)
All it takes for a written work to succeed artistically is a single writer with a solid command of craft and a strong sense of audience. Film is much more difficult: the core story needs to be supported with the right visuals, performances, pacing, music, etc., so you need a good director, cinematographer, composer, actors, and so on in addition to a good screenwriter.
I chose The Saratov Approach as my film recommendation because all the elements come together so well. I've watched Mormon movies I'm supposed to like but found slow or strained: this one is just a pleasure to watch. I particularly enjoy the combination of intensity and lightness. Saratov Approach does a good job of showing how the little details of how people relate to each other matter in a time of crisis. Interesting, enjoyable work.

So...there's the list. Those of you have read these works: would you also recommend them? Would you put another urgent recommendation ahead on someone's list?
Those of you who try one--how'd it work out for you? I know I like these books, but I'm interested in knowing whether they're also good recommendations for others. Let me know what you think.

Sunday, January 17, 2016

This week's sacrament

The nurse ducked her head into my hospital room this morning to ask if I wanted the sacrament. I said yes, she closed the door, and then I got really emotional. You don't realize how much religious ritual means to you, I suppose, until you need it.

From the outside, it's just a piece of bread and tiny cup of water. In the hospital, of course, it's also a short visit from kind strangers, but a swallow of bread and a sip of water seem like odd gifts to bring a cancer patient.

For those who know, though, this is what my visitors will bring:

It's Jesus, who--after wearing himself thin walking the length of Galilee and Judea teaching, healing, warning, and loving--now lies flat on his face in Gethsemane suffering with me. It's his promise that whenever two or three gather,  remembering, he'll be.

It's the years I've spent trying to be one who remembers. The feeling of pew, folding chair, or foyer wall against my back as this act became a central part of my life's rhythm. The weeks I spend as a father wondering whether my three-year-old will touch one and only one piece of bread and whether my five-year-old will throw away the plastic cup after he drinks the water. The weeks I spent as fifteen-year-old hiding from the chapel before I worked up the courage to pass the tray on untouched, learning how to face myself so I could face God.

It's the people who carry faith and memory with me. The autistic deacon who sometimes wore pajamas under his dress clothes when he brought us the sacrament tray. The elderly sister whose house I used to bless the bread or water in--who once told me about the necklace she'd been given by her own grandmother, a pioneer from England who had crossed the plains. The grandfather and grandmother and aunts and uncles and cousins and second-cousins who have sat shoulder to shoulder in each other's chapels as we've gathered to welcome babies into the world or send missionaries out to it.

It's the hope that, though bodies are so easy to break and blood so easy to shed, healing and peace win out in the end. That there's a place beyond the grasp of death where we can eat and drink together, where the relationships we treasure deepen through the eternities and the hard experiences we endure are refined like gold into divine wisdom.

It's all that, and so much more. A symphony of meaning in every unassuming piece of bread, every silent cup of water.


My visitors come, thankfully, after I have had time to be helped to the bathroom to have my urine charted and been reminded by the five-foot walk that yes, I need my anti-nausea medication this morning. They come after I've had time to think a lot and write a little and even work up the resolve to start eating.

There are two brothers and two sisters, all with grey hair, conservative clothes, and kind eyes. Following the formal protocol for a patient of my  white blood cell count, the brothers don breathing masks as they walk into the room. The sisters wait at the doorway. One of the brothers explains that they live near the hospital, so today I'm part of their stake. It's their calling to bring me the sacrament and a short thought, he says.

He seems taken aback when my only response is to begin weeping openly.

"Hard day?" he asks.

"No," I say, "I just really appreciate you coming." It is enough for me today that this feeling is profound, even if I sound crazy.

After a moment, he blesses the bread. I let the familiar words sink into me and take it when the prayer is finished. The next brother blesses the water. I think of all the souls who will drink today as he gives me the cup.

When I'm done, they open the door so one of the sisters can give the spiritual thought from a mask-free distance. The Lord doesn't always take away our challenges, she says simply, but he does help us through them.

And as they go on to the next room, as I wipe the tears away from all the places where my beard used to be, I know--using the term in the Mormon sense to describe truths you anchor yourself in even beyond the constraints of language--that it's true.

Saturday, June 13, 2015

Age-appropriate activities

Last week, I promised to bring my ten-year-old daughter Kira to work with me at the Church History Library in Salt Lake. She was pretty excited to see my office, but I was pretty sure the excitement would wear off once she realized how incredibly boring it is to watch writers work. So I planned something else.

After she got a chance to check out the office, I asked, would she like to wander around Temple Square on her own?

She thought that sounded lovely.

As I started listing places she might want to check out, though, I realized there might be a hang up or two. I remembering loving the native-plant garden on the Conference Center roof, but I wasn't sure the tour guides would let an unaccompanied ten-year-old into their group. Not everyone shares my views on the importance of structured independence in childhood. Letting Kira wander central Salt Lake on her own might raise a few eyebrows.

I decided it would be worth it anyway.

When the day came, I took her out to temple square just after lunch at noon. I took a minute to show her how to use landmarks to find her way back to my office and left her with my cell phone in case she got really lost. And then I went back to work.

She explored for the next four hours. She called a few times with a report ("They did let me into the conference center tour!" "The north visitors' center by the temple is awesome!") and once left a message with a question ("Where exactly is the Beehive House?") which she resolved on her own before I got back to her. She had a great time, and got both a stronger sense of connection to our faith and history and some very tired feet.

I don't know what the right age is for setting a child loose in a downtown historical area. For Kira, ten was plenty old enough. Elijah would love to do the same, but at age four his wandering range is still limited to one side of our block. Maybe when he's eight?

I know there are risks to letting your children wander too far and try out too much when they're still young. But I tend to think that as a culture, we worry too much about those risks and don't think enough about the benefits of helping a kid develop some sense of independence.

In Kira's case, a slowly-growing "home range" of space she could wander without supervision has been important since she was five or so. Longer walks and trips to the grocery store where she led and I just followed helped her figure out how to navigate and make decisions while still feeling supported. And then things like using Google maps to help her figure out how to get to friends' houses a few blocks away rather than just driving her helped.

She still doesn't wander as far in the neighborhood as I did when I was a kid, back in the days when it was normal for kids to just take off on bikes and come back by dinner. But then again, nobody set me loose on temple square or gave me money to go buy ice cream on my own, either.

I read about a study once that showed adult American men have a stronger sense of direction than adult American women because in our generations, boys were typically allowed to wander farther than girls (girls who did wander a lot as young children typically had stronger senses of direction). I haven't looked for studies on other skills: do ten-year-olds who have to interact with cashiers develop stronger social skills? Do early childhood educational experiences have more staying power when kids have to find their way to the experience on their own? My guess is that there's some sort of benefit.

So where's the balance between safety and development? What is it wise to expect/allow from a 4, 6, 8, 10, or 12 year old? What tricks do you have for preparing your own children for independent experiences?

I think this is something we need to think more and talk more about.

Update: on a Facebook discussion of this post, someone asked about laws for leaving children on their own. In Utah, there is no legal age set. The Children's Service Society has a helpful checklist for deciding when to leave kids at home on their own and how to prepare them for a positive experience. With some modifications, I'd imagine a similar preparation and evaluation process applies to helping your kids safely navigate a public space on their own at a reasonable age. 


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